{ "id": 62413, "date": "2019-01-16T14:26:50", "date_gmt": "2019-01-16T13:26:50", "guid": { "rendered": "https:\/\/zjarr.tv\/?p=62413" }, "modified": "2019-01-16T14:26:50", "modified_gmt": "2019-01-16T13:26:50", "slug": "moter-e-vella-me-semundje-te-rralle-jane-te-rinj-por-ngjajne-si-te-moshuar", "status": "publish", "type": "post", "link": "http:\/\/zjarr.tv\/en\/moter-e-vella-me-semundje-te-rralle-jane-te-rinj-por-ngjajne-si-te-moshuar\/", "title": { "rendered": "Mot\u00ebr e v\u00eblla me s\u00ebmundje t\u00eb rrall\u00eb, jan\u00eb t\u00eb rinj por ngjajn\u00eb si t\u00eb moshuar" }, "content": { "rendered": "

Nj\u00eb mot\u00ebr dhe v\u00eblla ballafaqohen me s\u00ebmundjen e rrall\u00eb t\u00eb \u00a0‘Benjamin Button’.<\/p>\n

Michiel, 20 vje\u00e7 dhe Amber, 12 vje\u00e7, nga Vandeweert, Belgjik\u00eb vuajn\u00eb nga progeria, gjendje e rrall\u00eb gjenetike q\u00eb shkakton plakje t\u00eb p\u00ebrshpejtuar.<\/p>\n

Me \u00e7rregullimin q\u00eb prek vet\u00ebm 1 n\u00eb \u00e7do 4-8 milion\u00eb njer\u00ebz n\u00eb mbar\u00eb bot\u00ebn, Michiel dhe Amber p\u00ebrb\u00ebjn\u00eb 2 nga 155 rastet e njohura deri tani.<\/p>\n

Shumica e njer\u00ebzve q\u00eb vuajn\u00eb nga kjo s\u00ebmundje vdesin n\u00eb mosh\u00ebn 12-vje\u00e7are. Nd\u00ebrsa v\u00ebllai dhe motra kan\u00eb filluar t\u00eb ken\u00eb probleme me kockat, dh\u00ebmb\u00ebt dhe flok\u00ebt.<\/p>\n

Por ata nuk kan\u00eb nd\u00ebrmend ti dor\u00ebzohen fatit, Michiel i p\u00eblqen t\u00eb garoj\u00eb n\u00eb GoKart dhe Amber q\u00eb \u00ebsht\u00eb nj\u00eb balerin\u00eb e mir\u00eb.<\/p>\n

Ata kan\u00eb vendosur t\u00eb thyejn\u00eb edhe rekordin e jet\u00ebgjat\u00ebsis\u00eb s\u00eb nj\u00eb personi me progeria, q\u00eb \u00ebsht\u00eb 26 vje\u00e7.<\/p>\n

Michiel, i cili \u00ebsht\u00eb vet\u00ebm 1.4 metra tha: “Progeria na ka prekur flok\u00ebt, kockat dhe gjat\u00ebsin\u00eb, ashtu si njer\u00ebzit e moshuar. Thon\u00eb se jet\u00ebgjat\u00ebsia e nj\u00eb personi me progeria \u00ebsh\u00ebt 12 vje\u00e7 por ne po marrim ila\u00e7e dhe shpresojm\u00eb q\u00eb mund t\u00eb na zgjasin jet\u00ebn.”<\/p>\n

Michel u diagnostikua me s\u00ebmundjen kur ishte vet\u00ebm 8 muajsh, pasi prind\u00ebrit Wim dhe Godelieve Vandeweert e d\u00ebrguan n\u00eb nj\u00eb qend\u00ebr kujdesi p\u00ebr f\u00ebmij\u00eb ku mjek\u00ebt vun\u00eb re se dukej ndryshe.<\/p>\n

Kur Amber lindi, prind\u00ebrit i k\u00ebrkuan mjek\u00ebve t\u00eb b\u00ebnin analizat p\u00ebr t\u00eb qen\u00eb t\u00eb sigurt. 7 jav\u00eb m\u00eb von\u00eb zbuluan se edhe ajo kishte gjithashtu progeria.<\/p>\n

\"\"<\/a> \"\"<\/a> \"\"<\/a><\/p>", "protected": false }, "excerpt": { "rendered": "

Nj\u00eb mot\u00ebr dhe v\u00eblla ballafaqohen me s\u00ebmundjen e rrall\u00eb t\u00eb \u00a0‘Benjamin Button’. Michiel, 20 vje\u00e7 dhe Amber, 12 vje\u00e7, nga Vandeweert, Belgjik\u00eb vuajn\u00eb nga progeria, gjendje e rrall\u00eb gjenetike q\u00eb shkakton plakje t\u00eb p\u00ebrshpejtuar. Me \u00e7rregullimin q\u00eb prek vet\u00ebm 1 n\u00eb \u00e7do 4-8 milion\u00eb njer\u00ebz n\u00eb mbar\u00eb bot\u00ebn, Michiel dhe Amber p\u00ebrb\u00ebjn\u00eb 2 nga 155 […]<\/p>", "protected": false }, "author": 13, "featured_media": 62418, "comment_status": "open", "ping_status": "closed", "sticky": false, "template": "", "format": "standard", "meta": { "footnotes": "" }, "categories": [ 194 ], "tags": [], "class_list": { "0": "post-62413", "1": "post", "2": "type-post", "3": "status-publish", "4": "format-standard", "5": "has-post-thumbnail", "7": "category-lifestyle" }, "_links": { "self": [ { "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/posts\/62413", "targetHints": { "allow": [ "GET" ] } } ], "collection": [ { "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/posts" } ], "about": [ { "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/types\/post" } ], "author": [ { "embeddable": true, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/users\/13" } ], "replies": [ { "embeddable": true, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/comments?post=62413" } ], "version-history": [ { "count": 0, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/posts\/62413\/revisions" } ], "wp:featuredmedia": [ { "embeddable": true, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/media\/62418" } ], "wp:attachment": [ { "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/media?parent=62413" } ], "wp:term": [ { "taxonomy": "category", "embeddable": true, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/categories?post=62413" }, { "taxonomy": "post_tag", "embeddable": true, "href": "https:\/\/zjarr.tv\/en\/wp-json\/wp\/v2\/tags?post=62413" } ], "curies": [ { "name": "wp", "href": "https:\/\/api.w.org\/{rel}", "templated": true } ] } }