{"id":62413,"date":"2019-01-16T14:26:50","date_gmt":"2019-01-16T13:26:50","guid":{"rendered":"https:\/\/zjarr.tv\/?p=62413"},"modified":"2019-01-16T14:26:50","modified_gmt":"2019-01-16T13:26:50","slug":"moter-e-vella-me-semundje-te-rralle-jane-te-rinj-por-ngjajne-si-te-moshuar","status":"publish","type":"post","link":"https:\/\/zjarr.tv\/sq\/moter-e-vella-me-semundje-te-rralle-jane-te-rinj-por-ngjajne-si-te-moshuar\/","title":{"rendered":"Mot\u00ebr e v\u00eblla me s\u00ebmundje t\u00eb rrall\u00eb, jan\u00eb t\u00eb rinj por ngjajn\u00eb si t\u00eb moshuar"},"content":{"rendered":"

Nj\u00eb mot\u00ebr dhe v\u00eblla ballafaqohen me s\u00ebmundjen e rrall\u00eb t\u00eb \u00a0‘Benjamin Button’.<\/p>\n

Michiel, 20 vje\u00e7 dhe Amber, 12 vje\u00e7, nga Vandeweert, Belgjik\u00eb vuajn\u00eb nga progeria, gjendje e rrall\u00eb gjenetike q\u00eb shkakton plakje t\u00eb p\u00ebrshpejtuar.<\/p>\n

Me \u00e7rregullimin q\u00eb prek vet\u00ebm 1 n\u00eb \u00e7do 4-8 milion\u00eb njer\u00ebz n\u00eb mbar\u00eb bot\u00ebn, Michiel dhe Amber p\u00ebrb\u00ebjn\u00eb 2 nga 155 rastet e njohura deri tani.<\/p>\n

Shumica e njer\u00ebzve q\u00eb vuajn\u00eb nga kjo s\u00ebmundje vdesin n\u00eb mosh\u00ebn 12-vje\u00e7are. Nd\u00ebrsa v\u00ebllai dhe motra kan\u00eb filluar t\u00eb ken\u00eb probleme me kockat, dh\u00ebmb\u00ebt dhe flok\u00ebt.<\/p>\n

Por ata nuk kan\u00eb nd\u00ebrmend ti dor\u00ebzohen fatit, Michiel i p\u00eblqen t\u00eb garoj\u00eb n\u00eb GoKart dhe Amber q\u00eb \u00ebsht\u00eb nj\u00eb balerin\u00eb e mir\u00eb.<\/p>\n

Ata kan\u00eb vendosur t\u00eb thyejn\u00eb edhe rekordin e jet\u00ebgjat\u00ebsis\u00eb s\u00eb nj\u00eb personi me progeria, q\u00eb \u00ebsht\u00eb 26 vje\u00e7.<\/p>\n

Michiel, i cili \u00ebsht\u00eb vet\u00ebm 1.4 metra tha: “Progeria na ka prekur flok\u00ebt, kockat dhe gjat\u00ebsin\u00eb, ashtu si njer\u00ebzit e moshuar. Thon\u00eb se jet\u00ebgjat\u00ebsia e nj\u00eb personi me progeria \u00ebsh\u00ebt 12 vje\u00e7 por ne po marrim ila\u00e7e dhe shpresojm\u00eb q\u00eb mund t\u00eb na zgjasin jet\u00ebn.”<\/p>\n

Michel u diagnostikua me s\u00ebmundjen kur ishte vet\u00ebm 8 muajsh, pasi prind\u00ebrit Wim dhe Godelieve Vandeweert e d\u00ebrguan n\u00eb nj\u00eb qend\u00ebr kujdesi p\u00ebr f\u00ebmij\u00eb ku mjek\u00ebt vun\u00eb re se dukej ndryshe.<\/p>\n

Kur Amber lindi, prind\u00ebrit i k\u00ebrkuan mjek\u00ebve t\u00eb b\u00ebnin analizat p\u00ebr t\u00eb qen\u00eb t\u00eb sigurt. 7 jav\u00eb m\u00eb von\u00eb zbuluan se edhe ajo kishte gjithashtu progeria.<\/p>\n

\"\"<\/a> \"\"<\/a> \"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Nj\u00eb mot\u00ebr dhe v\u00eblla ballafaqohen me s\u00ebmundjen e rrall\u00eb t\u00eb \u00a0‘Benjamin Button’. Michiel, 20 vje\u00e7 dhe Amber, 12 vje\u00e7, nga Vandeweert, Belgjik\u00eb vuajn\u00eb nga progeria, gjendje e rrall\u00eb gjenetike q\u00eb shkakton plakje t\u00eb p\u00ebrshpejtuar. Me \u00e7rregullimin q\u00eb prek vet\u00ebm 1 n\u00eb \u00e7do 4-8 milion\u00eb njer\u00ebz n\u00eb mbar\u00eb bot\u00ebn, Michiel dhe Amber p\u00ebrb\u00ebjn\u00eb 2 nga 155 […]<\/p>\n","protected":false},"author":13,"featured_media":62418,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[194],"tags":[],"class_list":{"0":"post-62413","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-lifestyle"},"_links":{"self":[{"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/posts\/62413","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/comments?post=62413"}],"version-history":[{"count":0,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/posts\/62413\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/media\/62418"}],"wp:attachment":[{"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/media?parent=62413"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/categories?post=62413"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zjarr.tv\/sq\/wp-json\/wp\/v2\/tags?post=62413"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}